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Newsletter October 2020

Dear friends of Charlie Braveheart, The activities that we have been able to undertake in this Covid era are different from normal, but several projects are still progressing well, even if on a slightly smaller scale. In this newsletter we would like to inform you about the progress achieved over a number of our initiatives, and about some developments in the near future. Knowledge center The Charlie Braveheart Foundation supports a knowledge center where knowledge and information for healthcare professionals can be developed and shared. This concerns education, the development of guidelines, protocols and support with implementation and advice. (www.fromfeartotrust.com) Feedback from participating hospitals The participants in the courses in the first quarter of 2020 are regularly contacted to monitor implementation and follow up. These participants / teams are fully engaged in organizing further education in their own institutions, and are supported by the knowledge center (including participation in digital symposia, sharing presentations and content). The University Medical Center Groningen, in particular, has already done a lot in this regard. Educational program for professionals Fortunately, we can resume education in the autumn, albeit in smaller groups. In November, courses will be given in Maastricht (at the EMTRAC) and in Amsterdam (at B-Building). Here, 45 professionals (nurses, medical pedagogical providers, pediatricians and anesthetists) will be trained in our child-centered approach. Participating hospitals include the Emma Children’s Hospital (Amsterdam MC), the AZ from Bruges and the Spaarne Gasthuis. Association O.I. (osteogenesis imperfecta) and Metakids We are in close contact with the Vereniging O.I. (osteogenesis imperfecta, also known as brittle bone disease) and are working together on a good approach to be followed in the various care institutions for this group of vulnerable children, who frequently suffer fractures. There is also close contact with the Metakids Foundation (children with metabolic diseases) in order to better shape the approach and interventions for this group of children – which is less visible but very much concerned with care. Child home care More and more care, and also complex care, is moving to the home situation. This means that healthcare workers are increasingly faced with complex issues (such as metabolic diseases). In the 1st quarter of 2021, the knowledge center will offer tailor-made education to the organization Kinderthuiszorg, in order to train all care workers in additional skills. Amstel Academy In September and November, one of our faculty members will give a number of introductory lectures to the pediatric nursing course, affiliated with the Amsterdam UMC. Implementation support There is currently a counseling process at the Wilhelmina Children’s Hospital to support the implementation of nitrous oxide. This has already been done, among other things, by looking at the technical setup for the practice and by providing on-site supervision of the treatment of children with rheumatic complaints. Charlie Braveheart Europe Charlie Braveheart Europe will be founded in Switzerland this Autumn, to support initiatives in Switzerland, Italy and France from here as well. For this purpose, the international network of experts who have a lot of knowledge focused on anxiety, pain and compulsionfree care, are approached. Dutch Design Week Studio Uncoated is participating in Dutch Design Week. The topic is stress reduction through respiratory regulation. During this digital event, from October 17-25, designers and experts will be linked from multiple angles. There will also be a panel discussion on how this design can promote stress reduction from a medical and empathic perspective. https://ddw.nl/nl/programma/2809/aiki We hope this newsletter has informed you sufficiently well about the current state of affairs with our foundation in these difficult and turbulent times. Thank you very much for your kind attention and support! Wulf van Alkemade Chairman Stichting Charlie Braveheart

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